Tuesday, July 31, 2007
Sunday, May 27, 2007
Just a few cute updated photos of our boy! We're currently doing well after a big scare on Wednesday morning when Burke stopped breathing after eating his bottle. I (Chris) had to ressucitate him and thankfully was successful. he was blue and limp for approx 1 minute but started breathing again after I gave him mouth to mouth. We took a ride in an ambulance around the block to Childrens and then spent the night in the hospital but all checked out well and the tests on his swallowing and esophagus were totally normal. The experts think he was so upset and refluxing his milk so much that his body naturally shut down his airway to protect itself from aspiration. Burke bounced right back and has been fine ever since...the nurses thought he was so cute and happy in the hospital and asked if he was always this happy...the answer is yes with the exception of Wed morning :)! We're in the process of getting approved for a cochlear implant. We have approx 3 appts per week and they are pretty intense and exhausing for all of us (hence the lack of blogging lately). We hope that Burke will be approved (basically his hearing has to be bad enough to need an implant which we believe it is) and will have surgery sometime in July or August for the implant. The surgery is complicated but we have the best of the best surgeon who is one of the leading experts in our country! We've also discovered that Burke is lacking growth hormone so we'll be going to have more testing done in Endocrinology clinic and then he'll begin to receive injections of growth hormone for the next (get ready...) 16 yrs! aaaahhh...that is overwhelming but we're glad that they are catching this early so he doesn't loose inches or time for growth! Burke is a trooper and we're trying to hang in there with him...he's quite a kid with lots of personality. He's got a great sense of humor, loves to laugh and play, loves music, rides in his stroller, the wind in his face, his kitty cat, his silky green blanky, putting things (everything) in his mouth, the cool grass on his feet, stroking my hair when he falls asleep, eating, socializing and getting a bath. He doesn't like naps or being hungry and that's about it...pretty content for such an "exciting" lifestyle! :) Much love to you all...thanks for keeping up with us! Chris
Monday, April 30, 2007
Sunday, April 22, 2007
Monday, March 12, 2007
Friday, March 02, 2007
Forget the carseat, we're rollin Big Boy Style!! Our physical therapist ok'd us to use the stroller with Burke looking out at the world. After our appointment, I immediately came home and got him ready for his first big boy stroll. We went to the water to look at the ducks, found some pretty pink flowers to smell and admired the trees from a different perspective! He LOVED it! Burke is so focused and pays very close attention to his visual surroundings...he is a very smart little boy with much patience (just like his daddy)!
Today we had a great visit with Grandpa and Grandma from Yakima and auntie Layci and Uncle Nick from Tacoma. Tomorrow we are adventuring over to Bainbridge Island where I'm attending an overnight Women's retreat with my friend Elle while Nate and Burke stay with Mark (Elle's husband) and baby Avery...it will be an exciting time for Elle and I to enjoy one day and night away and get some good "girl" time and be encouraged! I am a bit nervous about how Nate and Burke will do without me but I have a feeling they'll survive (we've been through worse!) The only trick will be having enough milk for Burke...I'm still pumping by the way (8 months going strong!). We've calculated out the amounts and it looks like we'll have to make a "milk run" mid-day on Saturday but some of the ladies at church have volunteered to transport some milk (40 miles away) so I won't have to miss out on any of the retreat...I guess it's a little awkward to have a special transport set up for milk with someone I don't know but oh well..it's worth it! :)
Burke is such a fun little guy these past few days! His auditory verbal therapist is amazed at his progress and says he's got great cognitive abilities (beyond what she would expect for his age and preemie status)! Burke enjoys play the lights off lights on game...I flip the light switch on and off and point to the lights and he smiles and giggles. He is really getting the whole cause and effect thing now...he is already turning his head back to the light switch expecting me to turn the switch off or on...it's his way of requesting that I keep playing the game...soooo cute! He's becoming very interseted in the cat (who is currently scared of him) and he had a chance to pet her today and it was very cute. He's holding his head up now and able to sit with minimal support and play with his toys. He likes the little blue bird that chirps (Nina sent to him for Valentines day)...he also likes his soccer ball ALOT! (hmmm...I wonder who he takes after (like all of his 9 uncles who play soccer and not to mention his daddy who was a professional))! We've decided to train him to be a goalie...we figure with his sharp visual skills and good hand eye coordination he'll be perfect!
OK..enough for tonight...It's really late and I need to be in bed but was up working from home on a big project. I figure Burke will be up to eat in about 1/2 hr anyway so why go to bed now when I'll just have to get up...but, my eyes are drooping and head is heavy..big day tomorrow with lots of prep and packing for our weekend away...wish us luck and we'll fill you in when we return!
Sunday, February 25, 2007
Thursday, February 22, 2007
Thursday, February 08, 2007
Yesterday Burke weighed in at 13# 7oz....he's certainly growing well and eating like a champ...he tried sweet potatoes today and thought they were yummy.
to see videos of Burke go to www.youtube.com and log in with our user name:Burke 26 and password mayb362676
Tuesday, February 06, 2007
We've been having a great week! Burke has been so much fun to play and interact with. He loves to laugh and talk...and he especially loves daddy time! This week Burke has been able to eat a few times without being hooked up to his tube for "decompressing"...this has been a very exciting accomplishment!
Nate and I are both experiencing an intense and amazing bond with Burke. Yesterday Burke looked at me in a way that he's never done before...it was like he looked directly into my heart and I completely melted. It was almost like God was speaking through him saying...I love you and it's going to be ok. The really interesting part was that Nate had an entirely seperate experience with Burke that was very similar to mine. It wasn't until this morning when I was describing my experience that Nate explained he had the same! Burke has an incredible ability to communicate and relate to us...he is so "in tune" with his surroundings and the people in his life! His auditory verbal therapist says she would never have known he was a premie by the way he interacts socially...he is exceeding in his ability to communicate and connect...what a huge gift God has given us in this little boy. He inspires me every day!
Tuesday, January 30, 2007
Burke underwent his last BAER test yesterday...it was literally a "Bear" as he cried and cried for the first 30 minutes until he finally fell asleep. For those who don't know...Burke needs to sleep through the test so the audiologist can get accurate data....the testing usually takes 2 hrs! In order to do this, we had to sleep deprive him and allow him to get hungry so he'd take a nice long nap (he is typically a cat napper)...this is usually not a good idea for preemies and Burke is sensitive to being overtired and hungry! After he finally fell asleep, everything went well and we were able to get more information about his hearing. In a nutshell (there are many details of which are super complicated) his left ear has no measurable response to sound BUT his right ear has more responses to sound than we originally thought. With his "ears on" (hearing aids) he hears our voices and most speech sounds with the exception to the quieter sounds like "s" "th" "k" "f". He is really responsive to our voices and he is even starting to respond to his name...super exciting! :) He is constantly talking and his auditory-verbal therapist (Star) said she's never heard a baby (in her 30 yrs of working) who talks as much as Burke (we can't even get a word in without interrupting him)! Of course we never imagined Burke would have hearing loss on top of all his other medical battles but we are so hopefull that he will be able to learn how to listen & talk. We plan to teach him some sign language but will rely on verbal communication as primary. If you'd like to know a little bit more about the really great program that Burke is enrolled in to learn language, it's called Listen & Talk....http://www.listentalk.org
Friday, January 26, 2007
I recently bought a great book entitled "Changed by a Child; Companion Notes for Parents of a Child with a Disablity" authored by Barbara Gill. As you know, Burke has been diagnosed with severe to profound hearing loss...he is deaf and with that diagnosis comes membership to a whole new group of people...the disabled. I wanted to share some very touching and beautiful meditations and quotes from the book that resonated with me... I hope that it gives you a glimps of what goes on in the heart of a mom who has a baby with a disability and may change the way that you respond to those who do.
Sorrow ~ My pain felt like water penetrating into the sand, soundless, into the core of my being. -Anchee Min
When our baby was born we lost something that we were already in love with-our idea of what he should be. No baby could ever completely fulfill that idea or be that fantasy, but most babies approach or overlap our dream baby, because our dreams come from what we know, from our idea of the norm. A child with a disability was not in our picture at all, except maybe as an occasional fear. We who have a child with a disability lost not only our fantasy baby, but our reliance on having a "normal" baby.We feel this kind of loss deep within ourselves. It does heal, but it heals around the edges, leaving an open space in our heart. We grow around the scar and the hole in our heart, and they become part of our architecture, part of who we are. But when the wind blows a certain way, we always hear and feel it. It makes a sad sound. It makes our heart ache.
Difference ~ His deafness is neither a talisman or a curse, but something at once more prosaic and profound; an aspect of himself. -Leah Cohen, whose paternal grandparents are deaf.
What is wrong with this picture? Which one is not like the others? Which one doesn't belong? Picking out what's different is a skill we begin learning as young children. By the time we are teenagers we've become expert at finding who and what doesn't fit. It's a useful skill, enabling us to choose the freshest flowers or avoid the pothole in the road. But it can get in our way when we think about people with disabilities, leading us to focus on what's "wrong" and on how they are different from others , and to believe that disability means "abnormality" or "deficiency". It may lead us to think our own children can't belong because they are different. Our child's disability is a reality, but it is only one part of who he is; it need not define who he is or who we are.
Saturday, January 20, 2007
Our good friend and my co-worker Marcus was able to capture some great photos of Burke in mid December. We've decided to make all of the photos available for purchase to raise money for Children's Hospital. We feel very compelled to support the place that helped to save Burke's life. We realize that without their expertise and state of the art interventions, Burke would not be where he is today.
Please take some time to look at the photos and consider purchasing a few to support Childrens Hospital! http://fdlphotography.smugmug.com/gallery/2293827
Password is: Nelson
Lots of Love and Thanks!
Chris, Nate & Burke Nelson
Wednesday, January 10, 2007
Burke is now a whopping 12# 14oz and 23" long! Overall, he is doing great...growing and changing so much everyday. He especially loves his bathtime and is so cute in his little froggie towel (Thanks to our friend Kate!). We just got his new hearing aids yesterday...they're blue and look great on him (they match his eyes)! He is really responding well to our voices and starting to coo and talk (especially first thing in the morning...at like 4am)! The best part is when we turn on his hearing aids and the first thing he does is smile and giggle at us...it's amazing to experience a connection with him on this level!
Burke has slept through the night for the past 2 nights so we are feeling great...it's amazing how much a little bit more sleep can help all of us! I'm working part time and really enjoying being back in the office with my colleagues..it's great interaction and mentally stimulating so I feel refreshed when I return home! Erica is our nanny and she is doing a great job caring for Burke...she lives next door so it's super convienent for both of us! Nate is also doing well and enjoying his new job with DSHS as a social worker III for the guardianship unit.
God has been so good to us through this past year and we know that 2007 will bring much healing and peace to our family! Keep ya posted...more exciting changes to come!
Monday, January 01, 2007
Happy 2007!!! Sorry for the lack of blogs, our computer went down and by the time we got a new computer the holidays happened.
Burke is doing very good and is healthy and growing. We took Burke to Yakima for Thanksgiving and Christmas, both times were very healing and comforting for Chris and myself. Burke was loved on by family and friends and he loved it. Chris stayed a few extra days in Yakima after Christmas with Burke and continued getting loved on by family.
We want to say again how thankful we are for the support everyone gave us throughout 2006 and our journey. The support we recieved was want we needed and could not have asked for anything more. In the next few days we shall update you all more on the progress of Burke and our family.
Love to all