Wednesday, August 30, 2006
Monday, August 28, 2006
Tuesday, August 22, 2006
Just in case anyone was wondering what "binky training" is here's a picture for ya! In this pic Nate is feeding Burke a small amount of breastmilk through a tube attached to a pacifier. With each suck, Nate slowly & steadily pushes down on the syringe that contains the milk and it flows into the tube and out the end of the binky into Burke's mouth! This teaches Burke what it feels like to suck, swallow and breathe all at the same time! Both my boys are doing great...Nate is so patient with Burke and Burke is so patient with Nate...they make a great team! :)
Burke has been taking 10cc's (30 cc = 1oz) about twice a day and hasn't had any problems with aspirating or choking...we are super proud of him! In the next months, he'll continue to get a larger amount through his binky trainer and when he's ready, he'll graduate to a bottle. I've also started nursing him but we need lots more practice latching on and sucking. I'm very hopeful and know he'll get the hang of it!
Sunday, August 20, 2006
Well...we're still hanging in here at Children's and trucking along in the right direction (homeward bound). We're still just "talking" about going home so there are no official plans yet but we hope it will be sometime later this week. Burke's official due date is Aug 24th so we hope to be going home around then! In order to get there, Burke must gain weight steadily and have stable breathing. His weight gain has been slow but is on the rise and he weighs 6lbs as of yesterday! He continues to have 1 to 2 episodes of oxygen desaturations during the early morning hours which has been somewhat concerning as the doctors can't quite figure out why they're occuring. Burke hasn't been negatively affected by these episodes and doesn't require extra breathing support/oxygen which means his body is strong enough to recover nicely on his own. An expert plans to visit us tomorrow to help uncover the meaning behind these episodes and we pray she'll be able to tell us they're no big deal and we can go home!!! Burke is also being tested for respiratory viruses just in case these episodes might be related to possible development of a cold or infection. So far, he hasn't shown us any major signs of being sick (this would be a real bummer as it would keep him in the hospital longer).
Nate and I had a great weekend with family and friends who came to help us while we continue to get ready at home for Burke's official arrival! Nate and I had our first date night on Friday thanks to Jeremy & Larissa's babysitting help. The Nelson clan came over Saturday for a visit and to celebrate Grandpa Gary's b-day with baby Burke. We were also able to get some sleep for a few hours at home while Elysia & Kelvie babysat on Sunday! It's been so wonderful to have the support here in the hospital so we can leave for a few hours here and there. We love spending all day with baby Burke but being in a hospital setting can be quite stressful day in and day out. Just getting fresh air and sunshine is a real treat these days.
Please continue to keep us in your prayers as we anticipate another exciting but challenging transition to going home. Nate will also be starting his new job the first week of September so we have lots going on that may cause extra stress in our lives both with time management and finances...we trust that this new chapter will be full of hope, joy and peace as we trust God to provide in all ways (as He already has!)
Love to you all...and thank you for keeping up with the blog...we LOVE getting your encouraging messages!
Tuesday, August 15, 2006
Burke has been doing really well this past week! As you can see, he enjoy's hangin out with his little buddies & sucking on his beloved binky. He's becoming much more interactive now...it's so much fun to watch him experience the world around him. His old roomate and buddy Logan & his mom stopped by to visit. Logan is just 8 months old and has been at Children's for cancer treatment (which is going well). As you can see, Logan really wanted to get into Burke's crib and play....it was sooo cute! Unfortunatley (for Logan) we had to postpone his playdate until Burke gets a bit bigger.
As for Burke's medical progress...he continues to wax & wane with weight gain and is now receiving a high calorie formula (30 K/cals) added to my breast milk to help him along. As of tonight he weighs 5# 12oz which is about where we started last week so he's starting to make up the few ounces he's lost! He is now taking 6ml of breastmilk by mouth during his binky training sessions twice a day and LOVES it! Wow, it's so encouraging to see him actually suck and swallow milk! As soon as he can tolerate 10ml twice a day we plan to try putting him to breast to see how he does...exciting progress :)!
He had his hearing screened today but didn't pass the screening in his right ear. The audiologist thinks the background noise may have interfered with the test so will repeat it next month. She counseled us on the fact that Burke is at higher risk of hearing loss due to his prematurity and the fact that he received certain antibiotics that are ototoxic (cause hearing loss) ...we won't know if this is true until they can re-test him next month. She did reassure us that even though the test wasn't "passed" today it did show that he is able to hear at most frequencies (phew) so can respond to our voices and sounds around him.
Please please continue to pray for Burke's steady weight gain, ability to tolerate taking in milk by mouth directly into his tummy and the subsequent testing (hearing, etc) that are still pending. The battle we fight daily is to not be anxious about the unknown but to just take one day at a time and rejoice in the life and love that we have for that day!
Wednesday, August 09, 2006
Many thanks to those bringing the yummy food to help Nate and I stay strong too...we appreciate you all so much! :)
Monday, August 07, 2006
Oh yes, what you see is poop on Nate's shirt (at 2am) after a major explosion took place during "daddy's turn" at diaper changing! The nurses all agree that Burke has officially set the hospital record for biggest poop blow out of all time...his excrement shot 72 inches (yes we really measured) from his rear end, through daddy's shirt and over to the bed where I was sleeping! Incredible for such a little squirt! hehe! Fortunatley, I was spared from the mess but Nate had to spend the rest of the night in a hospital gown and pants. Thanks Burke for holding strong to the "Burke" family tradition...you've definitally proven yourself and you're uncles will be so proud :)
We had a great weekend with Dave & Shelly (Chris's brother & sis in law from Redmond, OR)! Burke was very content in their arms...we are convinced that the love surrounding him has a tremendous healing power! Thank you Dave & Shelly for spending the weekend with us!
Saturday, August 05, 2006
Friday, August 04, 2006
It was a great day today! Burke is feeling much better and so are we! Rosie and Gary came to help out and do some holding while mommy went to shopping for baby stuff at target! :) Burke LOVED all of the attention today (needless to say). It was especially wonderful for G-pa & G-ma Nelson to spend time cuddling their first grandchild!
Burke's made terrific progress this week and we expect him to be moving out of the NICU to the regular medical/surgical floor within the next few days. This means he's more medically stable now! He had his first taste of mom's breastmilk during his first "binky training" session. The occupational therapist said he did a great job of sucking and swallowing his first few drops of milk...he earned an A+! He continues to get more milk through his ND tube (nose to duodenum or upper intestine) and is gaining weight well! So, for the next few weeks we'll be working on feeding/swallowing and trying to control the reflux so his esophagus can continue to heal.
Also we'd like to thank all of our friends and co-workers for the fabulous food...you guys are awesome!
Wednesday, August 02, 2006
I talked to grandma today and she said the pneumonia is clearing in baby Burke’s lung and he is experiencing progress at this time. Thanks for your continual prayers!
Nate, Chris, Burke, and Family