10-9-06 The Three Babysitters


Hello from Home! This is a picture of Uncle Nick, Auntie Jill and our very friendly kitty cat babysitting Burke while mommy took a shower (what a luxury)! Auntie Jill came to stay with us for a few days and helped out tremendously...she took over when I was too tired to function..THANK YOU JILLY! It's been pretty overwhelming to meet all of Burke's needs during the past few weeks. He's quite fussy and a bit unpredictable but we're beginning to figure him out (and he's figuring us out too). Burke has really proven to be a fantastic eater and is gaining weight steadily. We rarley need to use his G-tube for feeding as he takes almost 100% of his feeding by mouth (a huge difference from one month ago). He was up to 8# 6oz last Tuesday and will be weighed again tomorrow at his pediatric appointment.

On another note, we recieved confirmation that Burke has hearing loss in both ears (one ear has progressively been getting worse and they believe this is due to receiving high doses of ototoxic antibiotics). His hearing loss will require intervention (hearing aids/cochlear implants). This has been a devastating diagnosis and we are really struggling with the implications this will have for Burke's development and future interactions with others. We are really praying that his hearing will be restored but if not, that we will be able to cope with this new diagnosis and all that it entails. What a road this has been...still on the journey of many unknowns...but we have hope that Burke's life will enrich us all and teach us how to love and life in a much deeper and more meaningful way.

Comments

D-Lo said…
We're so sorry to hear that, Nate and Chris. We'll continue to pray for you all.
11:40 PM
The Nelson Family said…
I love you Chris, Nate, and Burke!

love Bubba
11:46 PM
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