There is such comfort and rest in the faithfulness of God and his vast love that is beyond all measure! Watch as His glory is revealed through Burke's life. We wait patiently for Him to fulfill his promise to restore us.
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Anonymous said…
Oh my... What a gorgeous look !!! And that smile... YIPPIE !!!!
YES, it's official!...we're GOIN HOME! OH MY! In exactly three months Burke has managed three major surgeries, two major procedures,3 nosocomial (hospital acquired) infections, two rounds in the NICU, a million x-rays and florostudies, rounds and rounds of expert opinions and even more trials of ways to feed and gain weight. As of today, Burke has doubled his weight to 8 lbs and is taking in the appropriate amount of milk by a bottle (binky trainer good bye!)! His esophagus and stomach are slowly but surely starting to coordinate themselves appropriately and Burke is now HUNGRY when his tummy is empty and HAPPY when his tummy is full of mommy's milk! We've managed to convince Children's Hospital Surgical Team, Dieticians, Residents and Feeding therapists that premies with surgical complicaton CAN grow and gain weight on breastmilk alone through a process called Lactoengineering...I've even been asked to publish an article for the Journal of Human Lactation a...
Hello everyone, sorry it has been so long that we posted our last blog. Our schedules and appointments have kept us going day after day. Burke has been doing very well and he has been working dilgently at listening, talking, gaining muscle, playing, and growing...he's approx 15 lbs now! We're full on into the process for getting a Cochlear Implant for Burke...we think he's going to be a candidate but there is much testing to be done before they'll make a final decision. Our days are filled with lots of time spent eating, practicing our "auditory verbal" therapy, dealing with his hearing aids (which are working great but are a pain to keep on his ears and from buzzing with feedback) motor skill development and just playing and loving our time with this precious boy. He is soooo happy, content, playful, adorable, funny and giggly! His sweet little personality is really starting to show...he's totally cute! We have more good days than hard da...
After two weeks of school in a total communication (TC) classroom where the teachers use signed exact english and speak concurrently, Burke has learned his colors and the beginning of his ABC's. Everyday he asks to go to school, even on Sundays and then signs "crying" after I say "no school today". Regardless of the day (school or no school) we sit together at lunchtime and do a review of what Burke is learning. Usually this involves him quizzing me on my colors in sign. So the other day, this is how it went: I bring out two or three different colored bowls and ask him which colored bowl he wants. Burke then points to each and tells me what color it is, then gives himself a choice of which bowl he wants (and usually chooses blue). The other day, he chose yellow and instead of doing the sign (think of a hang loose sign) he looks up at me with those big blue eyes of his and promptly says "ye-yo" for yellow...aaaahhh...that was a huge amazing step for Bu...
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Loving you all
Michelle