There is such comfort and rest in the faithfulness of God and his vast love that is beyond all measure! Watch as His glory is revealed through Burke's life. We wait patiently for Him to fulfill his promise to restore us.
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Anonymous said…
Oh my... What a gorgeous look !!! And that smile... YIPPIE !!!!
It was another good day today. Burke rested peacefully and continues to breathe well...so well that they discontinued the oxygen that was being given through his nasal canula (yay..one more tube gone). He's also in the process of being weaned from the morphine...it's a slow process but the doctors have reassured us this is very common and the babies do just fine without any long term side effects! We are super proud of his progress. Monday he will be transfered to Children's Hospital...we are very excited to be closer to home. Please continue to pray that the transfer goes well and that he responds well to being weaned off the morphine. Thanks...we appreciate you all so much!
YES, it's official!...we're GOIN HOME! OH MY! In exactly three months Burke has managed three major surgeries, two major procedures,3 nosocomial (hospital acquired) infections, two rounds in the NICU, a million x-rays and florostudies, rounds and rounds of expert opinions and even more trials of ways to feed and gain weight. As of today, Burke has doubled his weight to 8 lbs and is taking in the appropriate amount of milk by a bottle (binky trainer good bye!)! His esophagus and stomach are slowly but surely starting to coordinate themselves appropriately and Burke is now HUNGRY when his tummy is empty and HAPPY when his tummy is full of mommy's milk! We've managed to convince Children's Hospital Surgical Team, Dieticians, Residents and Feeding therapists that premies with surgical complicaton CAN grow and gain weight on breastmilk alone through a process called Lactoengineering...I've even been asked to publish an article for the Journal of Human Lactation a...
Lots of progress over the past 2 days! Baby Burke is now getting my breastmilk through a feeding tube placed in his nose and is tolerating it well (he's never had anything in his tummy until now!). Prior to this he's been fed via an IV directly into his veins but now he's able to get a good dose of mommy's "medicine". He had a big poop this morning...we are thrilled about poopy diapers (never thought I'd say that!). They are weaning him off the ventilator and he is breathing more on his own. They say that he should be completely off the ventilator by Sunday night. Monday he will have a esophogram which will evaluate the surgical repair to his esophagus and detect any leaks or problems. Burke is trying so hard to wake up now...he opened one eye and looked at us yesterday! So cute! He moves his hands and legs and acts like he's trying to cry...this is good as it shows us signs that he's waking up and acting more like a healthy baby! Yesterday w...
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Loving you all
Michelle