Our precious baby just gets cuter everyday! He loves to be cuddled in his blanket and snuggled in our arms! Today he discovered his little hands...aren't they so cute all folded up!
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Anonymous said…
Hi Chris. I've been thinking about you a lot. If this Blog is any indication, it looks like you have a lot of loving support. I hope you are getting the rest and comfort you need during this tough time. The Sacred Romance, one of my favorite books (thank you!) has a great quote: "It is a world of magic and mystery, of deep darkness and flickering starlight. It is a world where terrible things happen and wonderful things too. Yet for all its confusion...it is a world where the battle goes ultimately to the good, who live happily ever after." It reminds me of the added layer of joy, fear and uncertainty that comes with motherhood. That little boy is blessed to have you as his mother. You and your family are in my prayers. Take care, Julie
YES, it's official!...we're GOIN HOME! OH MY! In exactly three months Burke has managed three major surgeries, two major procedures,3 nosocomial (hospital acquired) infections, two rounds in the NICU, a million x-rays and florostudies, rounds and rounds of expert opinions and even more trials of ways to feed and gain weight. As of today, Burke has doubled his weight to 8 lbs and is taking in the appropriate amount of milk by a bottle (binky trainer good bye!)! His esophagus and stomach are slowly but surely starting to coordinate themselves appropriately and Burke is now HUNGRY when his tummy is empty and HAPPY when his tummy is full of mommy's milk! We've managed to convince Children's Hospital Surgical Team, Dieticians, Residents and Feeding therapists that premies with surgical complicaton CAN grow and gain weight on breastmilk alone through a process called Lactoengineering...I've even been asked to publish an article for the Journal of Human Lactation a...
Papa Tom and baby Burke had their first bonding moment today...it was an intensely beautiful experience for them both. Burke slept peacefully in his arms while his respiratory rate and oxygen was the best it's been in days! Burke continues to improve but still needs support for breathing...we hope he'll be off the CPAP machine in a few days. Burke is now getting breastmilk again...not much but it will increase slowly over the days to come.
After two weeks of school in a total communication (TC) classroom where the teachers use signed exact english and speak concurrently, Burke has learned his colors and the beginning of his ABC's. Everyday he asks to go to school, even on Sundays and then signs "crying" after I say "no school today". Regardless of the day (school or no school) we sit together at lunchtime and do a review of what Burke is learning. Usually this involves him quizzing me on my colors in sign. So the other day, this is how it went: I bring out two or three different colored bowls and ask him which colored bowl he wants. Burke then points to each and tells me what color it is, then gives himself a choice of which bowl he wants (and usually chooses blue). The other day, he chose yellow and instead of doing the sign (think of a hang loose sign) he looks up at me with those big blue eyes of his and promptly says "ye-yo" for yellow...aaaahhh...that was a huge amazing step for Bu...
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Love the picture.
Love,
The Tibbett's