Uncle Derek and Burke had some serious bonding time over the weekend...Burke had a great time playing and snuggling with Uncle D! As you can see in the sleepy picture, Burke was out for the count.
Get link
Facebook
X
Pinterest
Email
Other Apps
Comments
Anonymous said…
I love the cuddle time pic. it is so cool to see him like that. Michelle
Does Burke have those socks on his hands so that he won't reach out and pull on Uncle D's flowing chest hair?
Anonymous said…
Wow, you guys have been great about keeping the blog postings coming. Thanks for your dillegence and your amazing witness in the face of this trial. Burke looks great! What a cute kid. Hang in there. We continue to remember you in prayer. Love, Carol and Hamilton
YES, it's official!...we're GOIN HOME! OH MY! In exactly three months Burke has managed three major surgeries, two major procedures,3 nosocomial (hospital acquired) infections, two rounds in the NICU, a million x-rays and florostudies, rounds and rounds of expert opinions and even more trials of ways to feed and gain weight. As of today, Burke has doubled his weight to 8 lbs and is taking in the appropriate amount of milk by a bottle (binky trainer good bye!)! His esophagus and stomach are slowly but surely starting to coordinate themselves appropriately and Burke is now HUNGRY when his tummy is empty and HAPPY when his tummy is full of mommy's milk! We've managed to convince Children's Hospital Surgical Team, Dieticians, Residents and Feeding therapists that premies with surgical complicaton CAN grow and gain weight on breastmilk alone through a process called Lactoengineering...I've even been asked to publish an article for the Journal of Human Lactation a...
After two weeks of school in a total communication (TC) classroom where the teachers use signed exact english and speak concurrently, Burke has learned his colors and the beginning of his ABC's. Everyday he asks to go to school, even on Sundays and then signs "crying" after I say "no school today". Regardless of the day (school or no school) we sit together at lunchtime and do a review of what Burke is learning. Usually this involves him quizzing me on my colors in sign. So the other day, this is how it went: I bring out two or three different colored bowls and ask him which colored bowl he wants. Burke then points to each and tells me what color it is, then gives himself a choice of which bowl he wants (and usually chooses blue). The other day, he chose yellow and instead of doing the sign (think of a hang loose sign) he looks up at me with those big blue eyes of his and promptly says "ye-yo" for yellow...aaaahhh...that was a huge amazing step for Bu...
Hello everyone, sorry it has been so long that we posted our last blog. Our schedules and appointments have kept us going day after day. Burke has been doing very well and he has been working dilgently at listening, talking, gaining muscle, playing, and growing...he's approx 15 lbs now! We're full on into the process for getting a Cochlear Implant for Burke...we think he's going to be a candidate but there is much testing to be done before they'll make a final decision. Our days are filled with lots of time spent eating, practicing our "auditory verbal" therapy, dealing with his hearing aids (which are working great but are a pain to keep on his ears and from buzzing with feedback) motor skill development and just playing and loving our time with this precious boy. He is soooo happy, content, playful, adorable, funny and giggly! His sweet little personality is really starting to show...he's totally cute! We have more good days than hard da...
Comments
Michelle
Love,
Carol and Hamilton